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Old 05-24-2019, 07:48 AM   #9051
brianlg31
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No news is good news. Macie is cruising along. She’s been a little fussy in the evenings but nothing obvious is wrong. We did lose Nurse Maria. She moved to Conroe so that hurts a little. Still trying to find a replacement.

Harley graduated last weekend, had a good trip. I go back and move her to Stephenville next weekend. As usual, busy busy.


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Old 05-24-2019, 09:49 AM   #9052
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Macie turns 20 years old today. So hard to believe! Happy Birthday Macie. Your still my baby.


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Happy Belated Birthday Macie, hope you had a great birthday


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Old 05-30-2019, 06:12 PM   #9053
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Ugh!! Keili is headed downtown with Macie. Guess I spoke to soon. I’ll post details in a little bit


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Old 05-30-2019, 06:24 PM   #9054
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Ugh!! Keili is headed downtown with Macie. Guess I spoke to soon. I’ll post details in a little bit


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Sending knee-mails brother



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Old 05-30-2019, 08:18 PM   #9055
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Ok hears the long story.

Macie has lost some weight, we could tell but weren’t sure how much. So yesterday she had a Botox appointment with Dr. Fransico. Doc took one look at her and said something isn’t right. Wouldn’t give her botox until a full blood work was done. Keili told him that she had been trying to get a appointment with Macie’s primary dr but to no avail. Doc asked if we were particularly attached to said primary dr. “Nope”. Doc said good I want her here at TIRR, turned to his assistant and told her to get Dr. so and so on the phone and set up a appointment. I LOVE DR. FRANSICO!. So he ordered the blood work and sent them home. Said when he got the results he would call and we would go from there. So still haven’t gotten results from blood work back. But this afternoon when Theresa cathed Macie had a large amount of blood in her urine. Keili called Dr Fransico and he said get her down town now. So being the awesome team that Keili and Theresa are, in no less than 5 mins they were loading Macie up and off.

I am so torn. I am suppose to leave in the morning to go to Oxford, Ms to move Harley to Stephenville. I know that Keili and Theresa can handle it, just don’t want to be gone if Keili needs me.
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Old 05-30-2019, 08:24 PM   #9056
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Prayers sent bud sounds like y’all a found a good doc
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Old 05-30-2019, 08:28 PM   #9057
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Dr Fransico is the Dr that does her Botox and takes care of her baclofen pump. He’s been with us from the beginning. He is amazing! He is one of the founding Dr’s who came up with the baclofen pump. You can see the glimmer in his eye when you start to ask questions. He loves what he does and he loves to talk about it.
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Old 05-31-2019, 05:09 AM   #9058
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Prayers answered. They are home. Urinary tract infection and abscess. Follow up with several Dr’s next week.


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Old 05-31-2019, 08:42 AM   #9059
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Prayers answered. They are home. Urinary tract infection and abscess. Follow up with several Dr’s next week.


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Thank the good Lord!


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Old 06-08-2019, 06:45 AM   #9060
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Good morning Macie gal, have a great weekend.
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Old 06-14-2019, 06:37 AM   #9061
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Hey pretty girl, hope your doing well. Have a great weekend.
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Old 06-14-2019, 06:48 AM   #9062
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Prayers sent.
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Old 06-14-2019, 10:15 AM   #9063
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Good morning, Miss Macie. Here it is Friday again and the weekend is coming fast. Hope ya'll have a great weekend.
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Old 06-18-2019, 07:51 PM   #9064
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Man it was busy around here. Let’s get you caught up.
Macie has lost a considerable amount of weight. Been to the Dr’s several times and can’t find anything wrong. We have been having problems with the feed pump/food bags. So we are wondering if she hasn’t been getting the amount of food that the pump says she is getting. We have started measuring precisely the amount of food put in the bag and what’s left at the end of the run time. So hopefully we can get it figured out.

Started Macie back on the one seizure medicine that we had taken her off of. Seems to be making a difference. Until she gets back to the full dose, she is drowsy a lot. But other than that she is doing good. Kale is here, and that always puts a smile on her face for the first day or two. But after that you can see she is annoyed with him. He’s 4 so full of energy and loud. LOL

New nurse. So far she is awesome. Wants to work as many hours as she can so that’s good. She doesn’t like driving back and forth so if Kale isn’t here she stays the weekend and sleeps in Kales room. Works out pretty good actually.

Took Kale to the deer lease this past weekend. He wanted to “shoot pigs”. Unfortunately the pigs had other plans. But man what a blast! He went and went and went! Good times.

I will try to do better at keeping you guys updated.
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Old 06-18-2019, 09:08 PM   #9065
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Prayers continuing for Y'all.
Thanks for all the updates.
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Old 06-20-2019, 06:36 AM   #9066
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Thanks Brian, always good to hear news on Macie. Praying for y'all.
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Old 06-20-2019, 07:33 AM   #9067
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God speed, Sweetheart! We all love you!
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Old 06-20-2019, 08:54 AM   #9068
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Good morning, Miss Macie. Weekend is sneaking up on us again. Have a great day, Miss Macie.

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Old 06-27-2019, 10:27 PM   #9069
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Funny how Macie’s routine has changed over the years. Now she starts fussing about 8:45pm. She gets meds and feed pump turned on at 9. We use to start a new movie that would take her to 11 when she gets more meds and ready for bed. Now she doesn’t stop fussing after meds/food. So not long ago I was at my wits end and said fine I’ll turn it off and you can go to sleep now! She calmed down and went to sleep. So her new bed time is 9. Guess she is getting old, LOL. If only I can figure out how to get rid of the 11 meds, then I could go to bed also.
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Old 07-02-2019, 06:45 PM   #9070
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Change is good. Have a great 4th Macie gal.
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Old 07-02-2019, 09:28 PM   #9071
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Funny how Macie’s routine has changed over the years. Now she starts fussing about 8:45pm. She gets meds and feed pump turned on at 9. We use to start a new movie that would take her to 11 when she gets more meds and ready for bed. Now she doesn’t stop fussing after meds/food. So not long ago I was at my wits end and said fine I’ll turn it off and you can go to sleep now! She calmed down and went to sleep. So her new bed time is 9. Guess she is getting old, LOL. If only I can figure out how to get rid of the 11 meds, then I could go to bed also.


Would it be possible to gradually back everything up two hours? I know jacking with it after this long may not be the best idea but I feel your pain! Sometimes dad just wants to crash out “early”...

We still pray for y’all daily and are patiently waiting on an Agape Healing!!! Love you brother...


Michael


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Old 07-02-2019, 09:43 PM   #9072
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Would it be possible to gradually back everything up two hours? I know jacking with it after this long may not be the best idea but I feel your pain! Sometimes dad just wants to crash out “early”...

We still pray for y’all daily and are patiently waiting on an Agape Healing!!! Love you brother...


Michael


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She gets so many, that they have to spaced out.
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Old 07-04-2019, 07:13 AM   #9073
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Happy 4th everyone! Macie is celebrating with some weight gain! She went to the Dr yesterday and has gained 6.3 pounds. We are very happy
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Old 07-04-2019, 07:42 AM   #9074
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Hallelujah! May the Gardner household have a great 4th!
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Old 07-07-2019, 04:28 AM   #9075
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Happy Sunday morning Macie gal, glad to hear you've gained some weight.
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Old 07-07-2019, 08:37 AM   #9076
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Blessed Sunday Macie!!! Glad to hear your doing well.


“There's more fun in hunting with the handicap of the bow than there is in hunting with the sureness of the gun.” -Fred Bear-
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Old 07-07-2019, 08:45 AM   #9077
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Good morning, Miss Macie. Ya'll have a great day.

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Old 07-08-2019, 08:13 PM   #9078
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Macie has a ear infection. Called her Dr I’m Houston and he won’t just prescribe meds. So we are off to the ER to have it looked at. Luckily we can go to our er and not down town. Luckily we live 1 1/2 blocks from the hospital. So off on a short walk. Going to will be easy, slightly down hill. Coming back, we’ll I’ll just have to suck it up. Lol.


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Old 07-08-2019, 08:18 PM   #9079
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Ear infections stink. Macie I hope you get some relief and get well soon.


“There's more fun in hunting with the handicap of the bow than there is in hunting with the sureness of the gun.” -Fred Bear-
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Old 07-08-2019, 08:45 PM   #9080
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Had to spill the beans that sister was coming home on Friday, to get a smile. Lol



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Old 07-08-2019, 09:49 PM   #9081
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Guess what?? She has a ear infection. Lol.


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Old 07-12-2019, 09:04 AM   #9082
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Miss Macie, I hope your ear infection is getting better. The weekend is almost here. Have a wonderful weekend.

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Old 07-14-2019, 06:26 AM   #9083
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Good morning Macie gal, hope the ear is better. Have a great day!
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Old 07-14-2019, 09:23 PM   #9084
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Macie, praying that your ear infection gets better.

That was a wonderful pic of you and dad.

God Bless the Gardner’s
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Old 07-14-2019, 09:45 PM   #9085
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Ear infection seems to be better. She still fusses when she is on her right side, so maybe still a little tinder. But mom is a meany and makes her lay on that side some. Can’t argue with her, in the 8 years Macie has been bed riden she hasn’t had a bed sore yet.
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Old 07-15-2019, 07:39 AM   #9086
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Just getting caught up, Brian. Lots of ups and downs, huh. Y’all stay strong and I’m here praying for more ups. Does Macie have a stomach tube? They can be problematic. Awesome to hear she’s gained some weight!
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Old 07-17-2019, 04:46 PM   #9087
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Happy Wednesday Macie gal.
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Old 07-17-2019, 07:29 PM   #9088
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Just getting caught up, Brian. Lots of ups and downs, huh. Y’all stay strong and I’m here praying for more ups. Does Macie have a stomach tube? They can be problematic. Awesome to hear she’s gained some weight!
Yes Sir. And yes it gives us fits!
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Old 07-17-2019, 07:36 PM   #9089
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Keeping y'all in our Prayers.
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Old 07-17-2019, 07:38 PM   #9090
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Great news on the ear infection getting better and especially the weight gain!
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Old 07-20-2019, 07:57 PM   #9091
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Macie, hope you’re having a great weekend.

We’re glad that things are getting better with your ear.


God Bless the Gardner’s!!!!
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Old 07-27-2019, 07:53 AM   #9092
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Good morning beautiful Macie, have a great weekend!
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Old 07-27-2019, 08:38 AM   #9093
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Good morning, Miss Macie. I hope all is well and ya'll are having a wonderful weekend.

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Old 07-27-2019, 08:40 AM   #9094
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sent
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Old 07-31-2019, 05:23 AM   #9095
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Good morning pretty girl! Have a great day.
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Old 08-04-2019, 09:48 PM   #9096
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8 years ago today we began this journey. We have certainly had our ups and downs. But so blessed to still have Macie with us. Thank you Lord for watching over her. And thank each and every one of you for praying and checking on her as often as you do.
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Old 08-04-2019, 09:56 PM   #9097
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My prayers will continue for Miss Macie and all of the Gardner family.
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Old 08-05-2019, 06:31 AM   #9098
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8 years ago today we began this journey. We have certainly had our ups and downs. But so blessed to still have Macie with us. Thank you Lord for watching over her. And thank each and every one of you for praying and checking on her as often as you do.
Yes, thank you Lord. Always thinking and praying for our Princess Macie and her wonderful family. Love you guys.
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Old 08-05-2019, 07:07 AM   #9099
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Good morning, Miss Macie. Here it is, Monday AGAIN. Where do all these Mondays come from? Have a great week!
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Old 08-05-2019, 12:25 PM   #9100
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Been a while since I’ve checked in. I’ve got no excuse. Just wanted to drop in and say have a great day! Continued prayers for everyone.


Sierracharlie out…
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