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Old 05-19-2019, 06:49 PM   #201
Joel
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Prayers for a speedy recovery for that tough little boy!


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Old 05-19-2019, 06:51 PM   #202
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Prayers Up
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Old 05-19-2019, 07:15 PM   #203
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What a trooper, prayers for you guys!
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Old 05-20-2019, 12:43 PM   #204
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Afternoon everyone, Weston himself is doing amazing still. Actually a little too active, he got a bit rowdy playing golf yesterday and made the bottom of his chest incision bleed a little. So no more swinging toys lol. Drís said everything was fine it was just superficial. Unfortunately he still has a lot of drainage from his lungs. Thatís the only thing keeping us here. Drís changed up his meds today to try and dry it up some. In reality whatís causing the drainage is the all the extra blood flow to his lungs now and the fact his heart is so strong his pressures are high than normal for a heart kid. His BP actually is in perfect range for a normal kid with normal blood flow. So itís not nesssarly a bad thing itís just going to time for his lungs to adjust to all the extra blood flow. Which means a few more days in the hospital. Thank you everyone for your continued thoughts and prayers.
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Old 05-20-2019, 12:56 PM   #205
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Thank you Jesus!! This thread is the highlight of my day and thank you sir for being so diligent in keeping the rest of us updated!! Those pics of him are priceless and the very picture of faith and hope... I pray that innocent smile follows him throughout his life! Y'all are doing a great job with him... well, except GOLF!! That boy don't need to be playin' no cow-pasture pool!! He's a real man!!
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Old 05-20-2019, 01:05 PM   #206
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Attaboy, Weston!!!
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Old 05-20-2019, 02:10 PM   #207
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Weston, your the man!
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Old 05-20-2019, 03:03 PM   #208
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God Bless that Kid!!!
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Old 05-20-2019, 04:18 PM   #209
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Great news! Keep it up Weston!
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Old 05-21-2019, 01:58 PM   #210
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Great news!! Glad to hear that Weston is doing well!
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Old 05-21-2019, 02:33 PM   #211
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Great news, prayers are now for parents to have the energy to keep up with him!
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Old 05-21-2019, 03:20 PM   #212
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Weston, You are the MAN!! Continue prayers for your recovery.
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Old 05-21-2019, 04:57 PM   #213
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Weston is still rockin-and-rollin! Busy little boy. His drains have slowed down quite a bit but not enough to get them out. Also, we found out today that his potassium is pretty low so we have to get that up. We are hanging in there and trying to stay busy. Big surprise of the day was a fellow TBHíer stopped by to say hi! We got to talk hunting and fishing for a while. Thanks Sweldo73 the visit was appreciated!
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Old 05-21-2019, 05:35 PM   #214
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It was good to see y'all, and especially good to see how well Weston is doing! Watching him in person, it's amazing he just had open heart surgery - tough little guy. When he's all healed up, he's going to wear y'all out.
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Old 05-21-2019, 09:13 PM   #215
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Default Westonís surgery updates.

Looks like a good day today! Weston looks like he is doing amazing, I bet he is getting cabin fever being stuck in there this long.....
I am sure he loved the company today and couldnít get enough of the bucks sweldo73 has on camera!!! Continued prayers for speedy recovery!!


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Old 05-21-2019, 09:30 PM   #216
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Just now seeing this thread Kurdawg! So glad Weston is doing great and all went well and as expected! TX Children’s is an amazing place where miracles happen daily! We went down this exact same route with Griffin but had opposite results! So I’m glad Weston is doing great! I will be praying for him and you guys!
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Old 05-21-2019, 09:30 PM   #217
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Thank you Jesus!! This thread is the highlight of my day and thank you sir for being so diligent in keeping the rest of us updated!! Those pics of him are priceless and the very picture of faith and hope... I pray that innocent smile follows him throughout his life! Y'all are doing a great job with him


My thoughts exactly!
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Old 05-22-2019, 06:09 AM   #218
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Always great to see that smiling face! Weston, your a tough little man!
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Old 05-22-2019, 08:35 AM   #219
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Thanks again for updates!
Prayers Continuing!
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Old 05-22-2019, 08:47 AM   #220
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Still Praying.....He is an amazing young man.
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Old 05-22-2019, 09:20 AM   #221
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Great news, glad to hear everything is going good. Praying you will all be home soon.
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Old 05-22-2019, 10:05 AM   #222
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Weston, looks very healthy. Praying for drainage to clear up. LORD bless that child and his parents.
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Old 05-22-2019, 12:26 PM   #223
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Weston strong!
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Old 05-22-2019, 02:35 PM   #224
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Afternoon everyone, Weston is still going strong not much has changed. His drainage is going down but not quite low enough to remove the drain tubes today but maybe tomorrow. We did have another visitor today SaltwaterSlick stopped to say hi. He brought Weston a SWEET Astros hat that fits him perfectly (sorry Smart) and this beautiful board that he said he saw and thought of Weston. Thank you very much for everything you definitely made Westonís, Mommyís and Daddyís day! Unfortunately our visit got cut a little shorter than we wouldíve liked, Westonís shoulder started hurting from having a very active morning and stopping pain medicine this morning. With them upping the diuretics they donít want his liver and kidneys doing any extra work. But he did get a little something to help and is resting now. Again thank you everyone for the thoughts and prayers.
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Old 05-22-2019, 02:53 PM   #225
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It was absolutely amazing to meet SaltWaterSlick! I doubt he nows how much his inspirational prayers have helped us! Thank you so much for the visit and the hat!
The board will proudly be hung in our home! Xoxo!
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Old 05-22-2019, 03:36 PM   #226
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Well, what a treat it was for me to see our official TBH hero!!
OH YEA, to all our green screen brothers and sisters, Weston is officially the TBH Captain America now... He has an official name badge on of his nurses made for him and this "Superman" stuff is SO YESTERDAY!! So y'all remember that as he's in his official Captain America training and rehab phase now!!

Get well soon little man!!
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Old 05-22-2019, 06:47 PM   #227
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Good stuff Charlie!
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Old 05-22-2019, 07:08 PM   #228
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Glad he's recovering strong!
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Old 05-22-2019, 09:11 PM   #229
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Quote:
Originally Posted by SaltwaterSlick View Post
Well, what a treat it was for me to see our official TBH hero!!
OH YEA, to all our green screen brothers and sisters, Weston is officially the TBH Captain America now... He has an official name badge on of his nurses made for him and this "Superman" stuff is SO YESTERDAY!! So y'all remember that as he's in his official Captain America training and rehab phase now!!

Get well soon little man!!
Glad you were able to make it by there, Charlie!
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Old 05-22-2019, 09:18 PM   #230
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Glad you were able to make it by there, Charlie!
Thanks for the help Scott! Enjoyed our talk... We gotta do it again!
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Old 05-23-2019, 01:40 PM   #231
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Getting ready for nap. He has spent another morning very active! We are running out of things to entertain such a busy boy. Also two of his friends/his age got to go home, so thatís a bummer!

Please keep those prayers coming for the drain tubes, and tummy issues to be resolved! Drainage is still going down but not quite enough to pull tubes. Hopefully TOMORROW!!! Love you all!
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Old 05-23-2019, 01:48 PM   #232
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One day at a time....stay strong Dad!! He's doing great.
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Old 05-23-2019, 02:04 PM   #233
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It's a good thing and a bad thing, this time of the post op... It is rougher on mom n dad than it is the patient... Patience is tough to come by for parents when it comes to their kiddos. Weston's doing great, and he will be home and back to a hunert percent before you know it!!

Lord, we ask you to put your hand on this little boy and dry up the leakage that makes these tubes necessasry. They are foreign in his body and we ask You Lord take them from him. Strengthen his lungs to accept the life-giving blood flow they now are getting. Let this strengthen him and grow him into the man You need him to be. Give mom and dad the patience to stand beside him and love on him as You do Your work. Direct all his care-givers that are ministering to him. Lord we thank You so very much for the specially gifted men and women who are the life-blood of Texas Children's Hospital, and the work that they do. Thank You for assembling such a loving, caring team to do Your work on Weston. We ask You to continue to work through them all to dry up the leakage and to ease the tummy pain and digestive issues Weston is having. Heal him Lord as he is such a special little man and loved by so many. We know Lord that none of us can love like You and we ask You for Your unbounded agape love to cover this family now, in Jesus name, Amen.
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Old 05-23-2019, 05:20 PM   #234
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I'll let Charlie do the heavy lifting but I check on the little Trooper every day. My thoughts are with him. Go Guy!
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Old 05-23-2019, 07:02 PM   #235
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Continued prayers for Weston and for yíall.


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Old 05-23-2019, 07:04 PM   #236
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I have been away for a bit, but wow!! What an amazing journey!

Prayers for complete lasting healing and good health!
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Old 05-23-2019, 07:15 PM   #237
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Hang tough Weston! It won't be much longer. The good Lord has special plans for you in life.
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Old 05-23-2019, 09:37 PM   #238
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Quote:
Originally Posted by SaltwaterSlick View Post
It's a good thing and a bad thing, this time of the post op... It is rougher on mom n dad than it is the patient... Patience is tough to come by for parents when it comes to their kiddos. Weston's doing great, and he will be home and back to a hunert percent before you know it!!

Lord, we ask you to put your hand on this little boy and dry up the leakage that makes these tubes necessasry. They are foreign in his body and we ask You Lord take them from him. Strengthen his lungs to accept the life-giving blood flow they now are getting. Let this strengthen him and grow him into the man You need him to be. Give mom and dad the patience to stand beside him and love on him as You do Your work. Direct all his care-givers that are ministering to him. Lord we thank You so very much for the specially gifted men and women who are the life-blood of Texas Children's Hospital, and the work that they do. Thank You for assembling such a loving, caring team to do Your work on Weston. We ask You to continue to work through them all to dry up the leakage and to ease the tummy pain and digestive issues Weston is having. Heal him Lord as he is such a special little man and loved by so many. We know Lord that none of us can love like You and we ask You for Your unbounded agape love to cover this family now, in Jesus name, Amen.

Thank you! Yes i think it is harder on us still being here. He has been an absolute trooper about not fussing about wanting to go home, etc. I think today was probably the hardest on him, the other little kid he was playing with went home this morning after over a MONTH! He was sad that she left, then the play room didnít open today. Since he still has his chest tubes in we canít leave our floor except to go up one level to the play room. Itís been an adjustment for a kid who is outside most of the time but he has handled it tremendously!! When this is all said and done we will have to invite you to go crappie fishing with us.
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Old 05-24-2019, 01:25 PM   #239
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Can anyone tell whatís missing?

Thatís right NO MORE DRAINAGE TUBES!!! Yea!!
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Old 05-24-2019, 01:46 PM   #240
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Awesome! Glad to see he's doing so well.
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Old 05-24-2019, 01:49 PM   #241
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Great news!
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Old 05-24-2019, 01:51 PM   #242
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Go Weston go!

God is great!

The fish are biting, and there's hogs to be kilt. Gotta go!
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Old 05-24-2019, 02:35 PM   #243
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There’s that smile! Way to go Weston!
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Old 05-24-2019, 02:36 PM   #244
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Quote:
Originally Posted by Kurdawg
Can anyone tell whatís missing?

Thatís right NO MORE DRAINAGE TUBES!!! Yea!!
Good deal!
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Old 05-24-2019, 02:51 PM   #245
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YEEE HOOOO!!! Thank You Jesus!!
Kurtis, I hope y'all have a great weekend and get to celebrate Memorial day at HOME!! I'll be out of touch after Sunday morning, but will continue to pray for continued healing and strengthening for TBH-Captain America!!

I'd love for Weston to show me the ropes on Crappie fishing!
How long before he'll be cleared to go out and really do things? I have another idea cookin' up in my head..
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Old 05-24-2019, 02:57 PM   #246
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Lord God in Heaven, thank You for this healing You have done! Thank You for providing such a place as Texas Children's Hospital and the wonderful miracle workers You have put there! Lord we ask You for a special healing for Weston, that his heart be healed and continue to deliver blood to his body the way You intended. Also Lord, Heal his scars. The pictures of his tortured little body are painful for us to look at, but the angelic smile You have graced him with overcomes all that. We ask You, to cover his scars and make them but a memory as time goes by. Let them be a testimony of Your great work. Lord keep this healing process going, and give his tummy rest and return to Weston his appetite that he may grow strong and speed up his healing. Comfort mom and dad Lord and give them peace knowing that You have them in Your hand and secure from all harm. Lord, thank You for Your Son too, the Son that is our Savior and our Advocate that gives us access to You Father God. In that Son's name Jesus we ask and pray for these things, Amen!

Y'all have a great weekend!!
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Old 05-24-2019, 03:38 PM   #247
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Quote:
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YEEE HOOOO!!! Thank You Jesus!!
Kurtis, I hope y'all have a great weekend and get to celebrate Memorial day at HOME!! I'll be out of touch after Sunday morning, but will continue to pray for continued healing and strengthening for TBH-Captain America!!

I'd love for Weston to show me the ropes on Crappie fishing!
How long before he'll be cleared to go out and really do things? I have another idea cookin' up in my head..
They said 6 weeks from surgery date before fishing, etc. so about another 4.5 weeks.
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Old 05-24-2019, 05:27 PM   #248
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Continued prayers for Weston, mom and dad too!!!


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Old 05-24-2019, 06:04 PM   #249
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Way to go, Weston...I mean Captain America!!
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Old 05-25-2019, 04:45 PM   #250
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We are all over the place now that those terrible tubes are out! Took a trip to the park here in sight. And many trips exploring the hospital. This morning Weston took a ride to Radiology. Had an Echo, and labs. If all this looks good we are out of here tomorrow! We are all ready to go home and sleep in our own beds. But most of all have room to play.
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