Hey pretty girl, hope your doing well. Have a great weekend.
Announcement
Collapse
No announcement yet.
Macie :)
Collapse
X
-
Man it was busy around here. Let’s get you caught up.
Macie has lost a considerable amount of weight. Been to the Dr’s several times and can’t find anything wrong. We have been having problems with the feed pump/food bags. So we are wondering if she hasn’t been getting the amount of food that the pump says she is getting. We have started measuring precisely the amount of food put in the bag and what’s left at the end of the run time. So hopefully we can get it figured out.
Started Macie back on the one seizure medicine that we had taken her off of. Seems to be making a difference. Until she gets back to the full dose, she is drowsy a lot. But other than that she is doing good. Kale is here, and that always puts a smile on her face for the first day or two. But after that you can see she is annoyed with him. He’s 4 so full of energy and loud. LOL
New nurse. So far she is awesome. Wants to work as many hours as she can so that’s good. She doesn’t like driving back and forth so if Kale isn’t here she stays the weekend and sleeps in Kales room. Works out pretty good actually.
Took Kale to the deer lease this past weekend. He wanted to “shoot pigs”. Unfortunately the pigs had other plans. But man what a blast! He went and went and went! Good times.
I will try to do better at keeping you guys updated.
Comment
-
Funny how Macie’s routine has changed over the years. Now she starts fussing about 8:45pm. She gets meds and feed pump turned on at 9. We use to start a new movie that would take her to 11 when she gets more meds and ready for bed. Now she doesn’t stop fussing after meds/food. So not long ago I was at my wits end and said fine I’ll turn it off and you can go to sleep now! She calmed down and went to sleep. So her new bed time is 9. Guess she is getting old, LOL. If only I can figure out how to get rid of the 11 meds, then I could go to bed also.
Comment
-
Originally posted by brianlg31 View PostFunny how Macie’s routine has changed over the years. Now she starts fussing about 8:45pm. She gets meds and feed pump turned on at 9. We use to start a new movie that would take her to 11 when she gets more meds and ready for bed. Now she doesn’t stop fussing after meds/food. So not long ago I was at my wits end and said fine I’ll turn it off and you can go to sleep now! She calmed down and went to sleep. So her new bed time is 9. Guess she is getting old, LOL. If only I can figure out how to get rid of the 11 meds, then I could go to bed also.
Would it be possible to gradually back everything up two hours? I know jacking with it after this long may not be the best idea but I feel your pain! Sometimes dad just wants to crash out “early”...
We still pray for y’all daily and are patiently waiting on an Agape Healing!!! Love you brother...
Michael
Sent from my iPhone using Tapatalk
Comment
-
Originally posted by Brazos Hunter View PostWould it be possible to gradually back everything up two hours? I know jacking with it after this long may not be the best idea but I feel your pain! Sometimes dad just wants to crash out “early”...
We still pray for y’all daily and are patiently waiting on an Agape Healing!!! Love you brother...
Michael
Sent from my iPhone using Tapatalk
Comment
Comment