Sweldo73, When everything here gets a little less crazy my wife and I would like to talk to you. My wife was saying something about finding Dr. that deals with the Marfans. His surgon was Dr. Allen Milewicz We seen his Wife on Thursday for some genetic testing.
Please do, Wil. My boss is one of the world's leading surgeons in treating the cardiothoracic complications of Marfans (including the procedure your son had and specifically the aortic valve and aorta). We are heavily involved in research on Marfans and are working with Dr. Milewicz to capture the genetic profiles of individuals and families with connective tissue disorders so that we can study the disease and develop targeted therapies to treat the disease. You can reach me at the number I sent you.
Hey Wil, I'm very glad to hear Rhett is doing well. If y'all need anything let us know. My wife goes in very early in the mornings, and if you guys are staying with your son, and need something brought from Kingwood that you need, just let us know, and she can put it in the car and get it to you. I saw that he is supposed to be there a week or so. We'd love to help you in any way we can.
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